My world is on fire again. I have to deal with the nightmare of a rare disease. The world authority for it is based at Cleveland Clinic. Beyond the nice lady's team at Cleveland Clinic there are researchers at Children's Hospital of Philadelphia. That's really it. It is a fairly obscure thing that is unfortunately cancer-related. As much as I want to get out of northeastern Ohio that is not a good idea at the moment.

A hit rate of 1 in 200,000 is bad. That number is also an optimistic one, I think. Fortunately this isn't communicable. It still puts a crimp in life in ways I have yet to determine...